Your Experience Matters! Are you interested in participating in a Research Study about our online Social Skills Training module - "Beyond Surviving, Tools for Thriving After Burn Injury?" Phoenix Society for Burn Survivors would like to invite you to participate in an online research study for survivors of burn injury and their friends or family members. The primary goal of this study is to see the effects of a Social Skills Training program titled “Beyond Surviving … Tools for Thriving after a Burn Injury” in reducing social anxiety and improving community participation among burn survivors. Phoenix Society is collaborating with UT Southwestern and the North Texas Burn Rehabilitation Model System in conducting this research to assess the effectiveness of the online Social Skills Training. Find out more!
The Phoenix Society is working with The Johns Hopkins Regional Burn Center as well as The Johns Hopkins University Department of Physical Medicine and Rehabilitation and Department of Psychiatry to improve the lives of persons with burn injuries. As part of this effort, we are working together to develop and test a new program to help burn survivors manage their pain. Take Charge of Burn Recovery - Pain is a computer based, online program that gives information and tips on how to manage pain following burn injury. Phoenix Society is looking for burn survivors over the age of 18 to participate.
Phoenix Society member involvement is crucial to research work. By bringing together the researchers, care providers, and burn survivors we have had the opportunity to not only understand the challenges in burn recovery but truly address them with interventions/programs that will promote the best outcomes for those with burn injuries.The size of the Phoenix Society membership enables us to address one of the greatest challenges within burn care research—obtaining the number of subjects needed to conduct valid research. The Phoenix Society clearly has a network of burn care providers, survivors, and family members with a breadth of experience and passion for this work that is unparalleled. We are currently working with our partners on several research projects that will benefit from your involvement. We ask that when you receive an invitation to take part, you consider the value of your voice, feel the empowerment, and understand the impact you may have on the future of burn care if you choose to participate. We may not be researchers, but we live with a burn injury every day. We hold the keys to what will help us live the fullest life possible.
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