Providence, RI – A severe burn can be one of the most devastating injuries that a human body can suffer, both physically and emotionally. Medical advancements have improved survival rates over 96% (American Burn Association) in U.S. Burn Centers. But survival is not enough. There is a growing need and a demand to provide emotional support and recovery resources for burn survivors and their families as they endure the reality of lifelong healing from a burn injury. This is the message that more than 900 burn survivors and their families, caregivers, burn care professionals and firefighters will share with the world at the Phoenix Society for Burn Survivor’s 28th annual Phoenix World Burn Congress on October 19 to 22 at the Omni Providence Hotel in Providence, Rhode Island.
International Burn Survivor Gathering Focuses on Need for More Long-Term Recovery Services: Indianapolis, IN – A severe burn can be one of the most painful injuries that a human body can suffer, both physically and emotionally. For many families, the difficulty in finding access to long-term support services can add to their burden as they work to heal the physical and emotional scars. As survival rates climb over 96% (American Burn Association) in U.S. Burn Centers, there is a greater need for long-term recovery services to meet the physical and emotional needs of burn survivors and their families. This is the message that more than 900 burn survivors and their families, caregivers, burn care professionals and firefighters will share with the world at the Phoenix Society for Burn Survivor’s 27th annual Phoenix World Burn Congress on October 21 to 24 at the Indianapolis Marriott Downtown in Indianapolis, Indiana.
Grand Rapids, MI (August 18, 2015)-- Phoenix Society for Burn Survivors together with Project Paradigm, a private foundation, announced that 15,000 youth aged 7 to 18 have signed up for The Paradigm Challenge, a new competition that inspires youth to affect positive change in the world. The first annual Paradigm Challenge seeks original ideas to prevent injuries and fatalities from home fires—America’s #1 disaster threat. “The number of youth who have stepped up to accept our Challenge to help save lives truly is inspiring,” said Jeff Richardson, Project Paradigm’s Founder and CEO. “Normally, youth contests attract around 1,000 participants or less. Thanks in large part to the support of our partners like the Phoenix Society, these youth are part of an exciting movement to make a difference. We will continue to engage as many youth as possible by the May 1, 2016 entry deadline,” said Richardson.
Press Release (June 17, 2015). Grand Rapids, MI The healing journey of a burn-injured firefighter can have its unique challenges – and the healing paths of the firefighter survivor and their family can be vastly different. A firefighter survivor often hopes to return to the profession where the burn injury occurred, while family members may struggle with the fear of loss. The physical recovery is challenging, but the psychological recovery can be overwhelming. A national outreach and education campaign was recently launched to more broadly publicize the peer support (Phoenix Survivors Offering Assistance in Recovery, or Phoenix SOAR) and other resources that are available for those in the fire service who have been affected by a burn injury. This initiative furthers the work that Phoenix Society and project partners—the International Association of Fire Fighters (IAFF) Charitable Foundation, National Fallen Firefighters Foundation (NFFF), and the University of Kentucky—have accomplished in this area.
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The Federal Emergency Management Agency (FEMA) has awarded a $269,000 grant to Phoenix Society for Burn Survivors, Inc., a 501(c)(3) non-profit. The grant will support and expand the Phoenix Society’s Phoenix SOAR® (Survivors Offering Assistance in Recovery®) program, with particular emphasis in increasing the access to firefighter peer support, educational information, and resources for burn-injured firefighters, their families, and everyone in the fire service affected by burn injury.
Grammy nominated, RCA Records Nashville singer/songwriter Chris Young will join Kidde Fire Safety to promote a national fire safety campaign that will help protect families by donating Kidde’s Worry-Free smoke alarms and help burned firefighters by expanding the Phoenix SOAR (Survivors Offering Assistance in Recovery) program. Run by the Phoenix Society for Burn Survivors, Phoenix SOAR for firefighters is the first national initiative supporting burned firefighters. Kidde and Young will be joined by national and local fire service including City of Tulare (CA) Fire Department Division Chief and Phoenix SOAR-trained peer supporter, Louis Nevarez. Nevarez’s left forearm was amputated after a burn injury.
Anaheim, CA – A severe burn can be one of the most painful injuries that a human body can suffer, both physically and emotionally. For many families, the difficulty in finding access to long-term support services can add to their burden as they work to heal the physical and emotional scars. As survival rates climb over 96% (American Burn Association) in U.S. Burn Centers, there is a greater need for long-term recovery services to meet the physical and emotional needs of burn survivors and their families. This is the message that more than 900 burn survivors, their families, caregivers, burn care professionals and firefighters will share with the world at the Phoenix Society for Burn Survivors® 26th annual Phoenix World Burn Congress® on October 22 to 25 at the Hilton Anaheim in California.
From October 22-25, 2014, more than 900 burn survivors, their families, burn care professionals and firefighters will attend the Phoenix World Burn Congress held at the Hilton Anaheim to share experiences with other survivors, increase their knowledge about recovery, and learn about support networks. During the four-day conference, sessions will cover topics ranging from social challenges such as dealing with anxiety and psychological pain after hospital discharge, a young adult program to help survivors ages 18-25 build confidence, fostering personal growth and enhancing communication skills. A special youth and family program for children from 7 to 17 years old will help family members learn how a burn injury impacts the overall family structure.
AlloSource, one of the nation's largest nonprofit providers of skin, bone, and soft tissue allografts, announced a pledge of $300,000 over 10 years to the Phoenix Society for Burn Survivors. This timely investment from AlloSource helps to ensure burn patients receive the very best aftercare they deserve. A significant portion of this gift ($250,000) will be dedicated to the Phoenix Education Scholarship (PEG) that will allow Phoenix Society to award more scholarships each year; helping more burn survivors achieve their educational dreams.
The Phoenix Society is working with The Johns Hopkins Regional Burn Center as well as The Johns Hopkins University Department of Physical Medicine and Rehabilitation and Department of Psychiatry to improve the lives of persons with burn injuries. As part of this effort, we are working together to develop and test a new program to help burn survivors manage their pain. Take Charge of Burn Recovery - Pain is a computer based, online program that gives information and tips on how to manage pain following burn injury. Phoenix Society is looking for burn survivors over the age of 18 to participate.
Phoenix Society member involvement is crucial to research work. By bringing together the researchers, care providers, and burn survivors we have had the opportunity to not only understand the challenges in burn recovery but truly address them with interventions/programs that will promote the best outcomes for those with burn injuries.The size of the Phoenix Society membership enables us to address one of the greatest challenges within burn care research—obtaining the number of subjects needed to conduct valid research. The Phoenix Society clearly has a network of burn care providers, survivors, and family members with a breadth of experience and passion for this work that is unparalleled. We are currently working with our partners on several research projects that will benefit from your involvement. We ask that when you receive an invitation to take part, you consider the value of your voice, feel the empowerment, and understand the impact you may have on the future of burn care if you choose to participate. We may not be researchers, but we live with a burn injury every day. We hold the keys to what will help us live the fullest life possible.
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